Terre Pruitt's Blog

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Posts Tagged ‘breathing tube’

Death Watch Continued

Posted by terrepruitt on April 3, 2014

Well, I didn’t want to turn this into a blog about death, but I have so many wonderful people asking me what is going on it is just so much more efficient for me to write it out. It saves time and heartache . . . I can just give one update and then point people to this. I don’t have to keep repeating myself. This is turning out not at all how we were told it would turn out. Which is really starting to annoy me because with everything that is now happening the medical staff is saying, “Oh that happens, sometimes.” Really? Well, no one told us that all this stuff might happen.

My mom has cancer. The size of her trachea has been reduced due to the cancer. The thought was that it would be reduced and damaged even further by the tube’s insertion and extubation. She had a tube in her throat for 10 days. The tube was connected to a ventilator but it was rarely breathing for her. For most of the 10 days she was breathing on her own, but the medical professionals felt that she would not be able to breathe without the tube. So when they told her she needed to pick a day on which they removed it the feelings were that not long after that she would die. But that has not been the case. The tube was removed at 2:28 pm on Monday, March 31, 2014 and she is still breathing on her own, today is Thursday, April 3, 2014.

Some of the “stuff” we were not aware of that could happen, the stuff my dad keeps being told sometimes happens is she is waking up. She wakes up and talks to him. One time it was for two hours (I think that was Wednesday). The nurses say she talks to them. She responds to inquiries about specific meds. She says thank you when then rearrange her. Her brain is not damaged nor is she in a coma, so she wakes up.

She is not hooked up to anything, but an IV for fluids. She gets fluids and meds. But she is wasting away . . . as happens to a body that does not get food after six days. A slow drawn out death.

I didn’t know that she would wake up and have moments of lucid consciousness. I thought the drugs they administer would keep her unconscious. So I am kind of annoyed that I am missing it. But at the same time I was happy that it was a couple of hours that my dad was able to spend with her. Alone. She was sad that they didn’t make it to their 50th wedding anniversary. That would have been 2015. There are many other things she was sad about but that was one thing she shared. I came home because I was under the impression that it would not go on this long. I was also under the impression that she would just sleep until the end.

Everyone copes differently . . . some of us continue on with our lives while other shut down. Shutting themselves away to wallow in sorrow. How people cope is a personal thing. Neither is right or wrong . . . it is just how we deal. I have been lifted up by teaching my classes and moving. My Nia students care and are supporting me. One of my yoga classes, the students don’t know. In one class where I was just subbing they didn’t know, but the peace and serenity in which they practiced REALLY helped me. It was so lovely to see their faces while they held their poses.

If it is not too much trouble, please keep your prayers and positive thoughts coming. They really are a source of strength to me.

Feel free to comment.

Posted in Diane Bacho | Tagged: , , , , , , , , | 20 Comments »

Doesn’t Mean You Die Even When You Decide To

Posted by terrepruitt on April 1, 2014

HOLY MOLY!!!! Sigh. Ok, I feel that since I started it, I need to continue with it. Right? I mean, it is not my intention to make my blog all about death, but since I asked for love and support, I think it is only fair that I give you all an update. I sat with my mother in her hospital room for roughly seven days. During that time she was presented with an option that would have been extremely painful and risky. The surgeon gave three scenarios that could occur and two of them pretty much ended with immediate death, so she opted to skip the procedure and just spend her last days with a tube down her throat, unable to speak and unable to cry. She entertained visitors. Not many because it was exhausting to her. She also was asked to pick the day on which she would have the tube removed. The thoughts were that her trachea is so encroached with cancer and would be so traumatized by the tube that when they pulled it out she would not have much time before she died.

Regarding the procedure mentioned — for those that are curious — it was a stent. A stent was to be placed in the trachea. The idea was that it would hold open the collapsing trachea so that she could breathe. But, it would only be for a few days. The stent is not a permanent or even semi-permanent solution. It is also metal and rigid, it would not have flexed and moved. It would have been very uncomfortable/painful, because the trachea moves.

She did not want to go. She had a lot left she wanted to do. Knowing she couldn’t do ALL that she wanted to do before she died, she thought she could at least do SOMETHINGS. So she decided to have the tube removed on Monday. She made that decision on a Wednesday. It is MY belief that if she knew all that she would have to go through between Wednesday, March 26th, and Monday, March 31st she would not have picked that day. But she wanted to at least get her Easter cards written out. She also wanted to advise me of who gets what in the stack of Christmas gifts she already bought. She also wanted to spend as much time with her family as she could — who wouldn’t, right? But in order to do so she suffered a lot. The medical professionals taking care of her were always there to administer the drugs she needed so she wouldn’t be in pain, but those drugs made her groggy and unable to think clearly so sometimes I think she held off a bit. Plus the procedures that need to be done to allow someone to breath through a tube are not comfortable. So anyway . . .

Hand holding - for post 04.01.14We got to visit for several days. As I have said several times, she was unable to talk with the tube in her throat. She also was unable to cry because the contractions that happen when one cries caused too much pain. Normally I would not tell someone not to cry because crying is such a great release. I believe crying is good for the BMES – ha, yes, that is a Nia acronym. It helps clear the tear ducts and allows for a physical release. Crying helps clear the mind also. It is an emotional release as well as a spirit helper so to me, it is a good thing. So if you want to cry, cry — except while you are driving or you have tube down your throat and it hurts too much.

I was there until Friday night. I got home around midnight on Friday. I came home to do some laundry, teach a yoga class, do some paper work, and pick up my husband. We went back up Saturday night. We visited all day Sunday and waited around for 1:00 pm on Monday. We all were under the impression that at 1:00 pm it would happen. But we all forgot that “hospital time” is not exact. They do things — even scheduled things — around other things. So our 1:00 pm scheduled extubation turned into 2:28 pm. I trusted the medical staff (although it turned out not to be who we were told it would be) would see that she was not in pain, but we still didn’t know if there would be any gasping and gagging and who knows. I was confident that it would not be a long time after. I saw the MRI of the trachea/esophagus area. Nurses and doctors helped convince me that it would be quick. Well it was not. We are going into our 29th hour.  While my mom is so medicated she doesn’t know what is going on and she feels no pain . . . this is NOT what she would have wanted. Lingering on. In fact every visitor that came to visit her while I was there, her answer to their comment of “I’m praying for you.” was “Pray that I don’t linger.” Again, I am at a loss.

Yes, we all have ideas as to why she has not died . . . . she is not ready . . . . she is doing it in her own time (something we call Natural Time in Nia) . . . ALL TYPES of ideas . . . but really we don’t know. All that I know is that this is really hard on my dad. This is not a case where she might revive and be ok. This is not a hopeful, “Oh, I’ll sit by your bedside until you are awake.” This is a grueling death watch. Judge me anyway you want, I left last night. I didn’t want to see her as I know she would not want to be. I didn’t want to hear the “death rattle”. Ugh!  Since it is hard on my dad, if it drags on until the weekend I will go back up.

Well, this post is way longer than I like to have my post, but I really wanted to let you know what the status is. Also . . . I guess it helps to write it out. One more thing . . . I believe that I would not have been able to handle this if it weren’t for all of you. So many people have “come out of the wood work” to share and support and deliver sparkles. So thank you all for sharing and caring and giving. I have not been told I am loved or said, “I love you” this much in as many days before in my life.

Please keep up with those thoughts, prayers, stories, sparkles, and all that jazz.  It REALLY helps!

 

Posted in Diane Bacho | Tagged: , , , , , , , , , , , , | 24 Comments »

Deciding On Death

Posted by terrepruitt on March 27, 2014

So, I am experiencing one of the oddest situations we have created for ourselves in the world of modern medicine and technology.  I am sitting with my mother waiting for her scheduled time to die.  I am starting this story for you a little bit backwards, because Tuesday I didn’t have a chance to post.  My mother has been sick for a bit and I have been wanting to write about it.  I wanted to share plus I am surprised to find it is a bit therapeutic.  But I always thought I should ask her before I posted something, but now I feel it is past that point.  I came up to be with her on Monday for the day for what we thought would be a procedure that would get her back out in the world and home.  But it turned out that the doctors decided that the procedure would be too risky AND it wouldn’t really give us much more time.  So they advised us to decide when they should remove the breathing tube that is keeping her breathing.

My mother is fully conscious.  She has cancer that has affected her throat so she has not been able to eat for probably about a year and a half.  She has not been able to swallow well for about eleven months.  She’s been spitting into a cup and used a feeding tube.  As I said I am telling this story a bit backwards, I will do another post regarding how this all started.  I thought I would have time on Tuesday after my Nia class and Yoga Class to type up the beginning of the story so you could get a glimpse of how much she has been through and to end up here is just — I have no words.  I started to type it but I didn’t finish and ended up not posting on Tuesday.

MachinesThe cancer has spread to a point that is has basically mangled her trachea.  She was in Reno on Friday and in the hospital with a tube in her throat Sunday morning.  The tube is a small one they use on pediatric patients.  That is the only size they could get down there and it was a struggle at that.  One is not meant to live like that.  The body will keep fighting it and trying to reject it.  And with her body it is really going to try to fight it because her body has already had a severely compromised immune system.  So a breathing tube — especially one meant for children — is not a long term solution.

When the tube was placed in her throat the idea was that it was going to be temporary — she was in the emergency room on Saturday and the tube was placed in during the wee hours of Sunday morning.  The hope was they could put in a stent on Monday.  Then, the thought was things could proceed a bit more.  There was talk of additional chemotherapy and maybe even more radiation.  But the team of doctors met and they were not optimistic.  The doctor that would be performing the surgery was very frank and honest in talking to us about the procedure and the miracle that he would have to perform.  He said he would do it if my mom said yes.  But with the facts in front of her she decided not to have it done.

So then her next decision was when to have the doctors remove the breathing tube, the one that is keeping her alive.  What kind of decision is that to have to make?  I am still just having the most difficult time with someone having to be faced with that decision.  Living with a breathing tube that is so small you can hardly get any air and that has to be cleaned out all the time is not for the weak.  She can’t talk, she can’t laugh, she can’t cough, and she can’t cry.  That is probably the worst part.  She can’t cry.  The pain is too horrible.  She has much to grieve for and she can’t cry.

This is just crazy.  I am at a loss.  I am putting it down because I have to get it out.  I am not ready to cry yet because I am pretty sure I won’t stop or maybe I am still just in shock.  I had an entirely different picture of what was going on.

We are visiting as much as we can.  Friends and family are visiting.  She is communicating by writing.  Sometimes she uses a little white board and sometimes she uses paper.  We are not so great at guessing what she is trying to say, so she patiently writes it down for us.  She also still has her sense of humor.  She is funny.

I have found that the outpouring of love from people is really up lifting and very helpful.  I have vaguely mentioned on Facebook that my mom was ill and many people have responded with positive thoughts and mentions of prayers.  It really is  helpful — all of it.  To know that people are out there doing what they do when they want to support someone in need is amazing.  So I am posting this to help shed some light on my vagueness and to give some of the people who are supporting me (and my family) some idea of what is going on.

Now the big thing.  The big bad.  The ugly.  The most important thing . . . . the hardest thing . . . the thing I am typing blindly (I can’t see through tears). . . . can you take a moment out of your day (I know I am asking a lot) on Monday, March 31, 2014 at 1:00 pm to help her on her way?  She is a strong, strong woman.  A woman who has a lot to live for so letting go might be really difficult for her to do.  If there were thoughts and prayers and vibes and ju-ju and love and songs and dances and lights and sparkly stuff to help her let go . . . to help her on the path to the next journey–that would be awesome.  The angels will be there too, but I am sure she would love the additional stuff — she always loves a party.  Would you do that?

Thanks.

 

Posted in Diane Bacho | Tagged: , , , , , , , , , , , , , , , , , , , , | 48 Comments »