Terre Pruitt's Blog

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Posts Tagged ‘love and support’

11:00 PM, Friday, April 11, 2014

Posted by terrepruitt on April 12, 2014

I posted some information on Facebook, but there are Nia students that are not on Facebook, but who read my blog. There are also yoga students who I am not friends with on FB who read my blog . . . and there are many of you who have sent love and support while my mom was dying. I am very grateful for all of the love, support, stories . . . and just everything that has been sent to my family and me. It has helped me more than you know. I will probably go back and tell the story of my mom’s last two years (or so) just because I really feel like sharing the story of the brave woman that she was. Also, it will serve as therapy for me and as a log. I will probably share more about my feelings on this whole “process of dying” that so many people just accept as the way it has to be. I do not agree nor do I feel it is an acceptable way for someone to spend their last days on this earth. The purpose of this post, though is to share with you that my mom died around 11:00 pm on Friday, April 11, 2014.

Dance Exercise, Nia, Nia at the City of San Jose, Nia classes in the South Bay, Nia Teacher, Nia Class, San Jose Nia, Nia San Jose, Nia workout, Nia, Zumba, PiYo, Gentle YogaThe hospital called me at a few minutes before 1:00 am on Saturday, April 12, 2014. So I keep thinking date of death is today, but I was told it was about 11:00 pm on Friday. I don’t know the exact time, but that is not all that important. What is important is that she is done with the twelve days of the “process”.

She went to the hospital on Saturday, March 22, 2014 because she could not breathe. They placed a tube in her throat to open the airway because they thought that they would be able to do more for her on the Monday. But her team of doctors decided that there really was nothing more they could do. One of her doctors was willing to perform a very risky surgery if my mom elected to go that route, but she did not. So she was told that she needed to pick a day to die . . . the conclusion reached by her medical team was that once the tube was removed her damaged trachea would collapse shortly there after and death would be relatively quick.

It was a common occurrence though, for my mother to not do anything according to what the doctors have previously experienced or think would happen. That is just how it has always been. She reacted badly to drugs that no one EVER had reactions to. She was always surprising her doctors and teaching them things by way of her body responding to treatments/procedures/etc differently than they had ever seen. This always served as a reminder to them, over and over, that each body is different.

The tube that was in her throat was thought to be keeping her throat open. As I said, the medical professionals thought once it was removed her throat would collapse. While the tube was hooked up to a ventilator it was rarely breathing for her. She was breathing on her own. Only once in a while — when she was tired — did the machine take over. And most often it was only for a few breaths. So she was able to breathe on her own, it was just an airway issue. Because trachea’s can’t be fixed or transplanted she was told she would die and that she needed to decide when that would be.

Dance Exercise, Nia, Nia at the City of San Jose, Nia classes in the South Bay, Nia Teacher, Nia Class, San Jose Nia, Nia San Jose, Nia workout, Nia, Zumba, PiYo, Gentle YogaShe sat in bed for 10 days contemplating death. All the while she worried about us — did we eat, we should go sleep, etc. She joked with us and allowed us to talk while she listened. The day for the scheduled extubation was stressful and nothing went as planned. In fact it was twelve days after the tube was removed that she died.

I want to emphasize that the hospital staff and my mom’s medical team was very kind and caring and they did all they could to make the dying process “comfortable”. My issue with the process is not with them nor the hospital. As I said, that is another post altogether, but I wanted to explain that she received good care.

We are now able to enter into the grieving stages of “after a loved one dies” . . . because up until now it was a horrific place of limbo. So, if you are able, please keep up all the wonderful stuff you have been doing. Please keep sending positive thoughts and prayers. Throw over that glitter, sparkle, and shine. I have really been lapping it up and I appreciate it so, so, so, so, so, so much.

Make a toast, take a bite, relish the breath . . . . .

Thank you.

Posted in Diane Bacho | Tagged: , , , , , , , , , , , , | 15 Comments »

Doesn’t Mean You Die Even When You Decide To

Posted by terrepruitt on April 1, 2014

HOLY MOLY!!!! Sigh. Ok, I feel that since I started it, I need to continue with it. Right? I mean, it is not my intention to make my blog all about death, but since I asked for love and support, I think it is only fair that I give you all an update. I sat with my mother in her hospital room for roughly seven days. During that time she was presented with an option that would have been extremely painful and risky. The surgeon gave three scenarios that could occur and two of them pretty much ended with immediate death, so she opted to skip the procedure and just spend her last days with a tube down her throat, unable to speak and unable to cry. She entertained visitors. Not many because it was exhausting to her. She also was asked to pick the day on which she would have the tube removed. The thoughts were that her trachea is so encroached with cancer and would be so traumatized by the tube that when they pulled it out she would not have much time before she died.

Regarding the procedure mentioned — for those that are curious — it was a stent. A stent was to be placed in the trachea. The idea was that it would hold open the collapsing trachea so that she could breathe. But, it would only be for a few days. The stent is not a permanent or even semi-permanent solution. It is also metal and rigid, it would not have flexed and moved. It would have been very uncomfortable/painful, because the trachea moves.

She did not want to go. She had a lot left she wanted to do. Knowing she couldn’t do ALL that she wanted to do before she died, she thought she could at least do SOMETHINGS. So she decided to have the tube removed on Monday. She made that decision on a Wednesday. It is MY belief that if she knew all that she would have to go through between Wednesday, March 26th, and Monday, March 31st she would not have picked that day. But she wanted to at least get her Easter cards written out. She also wanted to advise me of who gets what in the stack of Christmas gifts she already bought. She also wanted to spend as much time with her family as she could — who wouldn’t, right? But in order to do so she suffered a lot. The medical professionals taking care of her were always there to administer the drugs she needed so she wouldn’t be in pain, but those drugs made her groggy and unable to think clearly so sometimes I think she held off a bit. Plus the procedures that need to be done to allow someone to breath through a tube are not comfortable. So anyway . . .

Hand holding - for post 04.01.14We got to visit for several days. As I have said several times, she was unable to talk with the tube in her throat. She also was unable to cry because the contractions that happen when one cries caused too much pain. Normally I would not tell someone not to cry because crying is such a great release. I believe crying is good for the BMES – ha, yes, that is a Nia acronym. It helps clear the tear ducts and allows for a physical release. Crying helps clear the mind also. It is an emotional release as well as a spirit helper so to me, it is a good thing. So if you want to cry, cry — except while you are driving or you have tube down your throat and it hurts too much.

I was there until Friday night. I got home around midnight on Friday. I came home to do some laundry, teach a yoga class, do some paper work, and pick up my husband. We went back up Saturday night. We visited all day Sunday and waited around for 1:00 pm on Monday. We all were under the impression that at 1:00 pm it would happen. But we all forgot that “hospital time” is not exact. They do things — even scheduled things — around other things. So our 1:00 pm scheduled extubation turned into 2:28 pm. I trusted the medical staff (although it turned out not to be who we were told it would be) would see that she was not in pain, but we still didn’t know if there would be any gasping and gagging and who knows. I was confident that it would not be a long time after. I saw the MRI of the trachea/esophagus area. Nurses and doctors helped convince me that it would be quick. Well it was not. We are going into our 29th hour.  While my mom is so medicated she doesn’t know what is going on and she feels no pain . . . this is NOT what she would have wanted. Lingering on. In fact every visitor that came to visit her while I was there, her answer to their comment of “I’m praying for you.” was “Pray that I don’t linger.” Again, I am at a loss.

Yes, we all have ideas as to why she has not died . . . . she is not ready . . . . she is doing it in her own time (something we call Natural Time in Nia) . . . ALL TYPES of ideas . . . but really we don’t know. All that I know is that this is really hard on my dad. This is not a case where she might revive and be ok. This is not a hopeful, “Oh, I’ll sit by your bedside until you are awake.” This is a grueling death watch. Judge me anyway you want, I left last night. I didn’t want to see her as I know she would not want to be. I didn’t want to hear the “death rattle”. Ugh!  Since it is hard on my dad, if it drags on until the weekend I will go back up.

Well, this post is way longer than I like to have my post, but I really wanted to let you know what the status is. Also . . . I guess it helps to write it out. One more thing . . . I believe that I would not have been able to handle this if it weren’t for all of you. So many people have “come out of the wood work” to share and support and deliver sparkles. So thank you all for sharing and caring and giving. I have not been told I am loved or said, “I love you” this much in as many days before in my life.

Please keep up with those thoughts, prayers, stories, sparkles, and all that jazz.  It REALLY helps!

 

Posted in Diane Bacho | Tagged: , , , , , , , , , , , , | 24 Comments »